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ulcerative colitis surgery

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Q: Ulcerative colitis surgery – has anyone had surgery to remove the bowel?
If anyone has had surgery to remove their bowel, could you please tell me how it has affected your life? Is your quality of life better after having the surgery, and were there any side-effects? I have had UC for two years and no medications are working. I am not employed at the moment because I’m so sick all of the time, I am seriously considering having the surgery so I can lead a normal life like everyone else. Thank you
Swapan, would you mind please listing the foods that you mentioned made the disease worse? Thank you

A: I have had a few operations and yes you can lead your life forward yet yes there is some changes of course. i had a huge operation at the age of 12 and not knowing all of the out come i have allot of things i wish i would of known and will always have things I wish were different of that I could change( it is life). you have to love yourself and if your sickness is life or death then I say it is your choice(life is always beautiful,smile).
just to say..I’ve never been on this sight b4 but you caught my eye so here I am. To make it short,I am married and I have 4 children and believe that you can do anything,deal with life as long as you start with you.IT”S ALL ABOUT YOU!

Q: what is the ulcerative colitis surgery?
my sister is suffering uc , now doctor ask for surgery , this is possible for normal life after surgery

A: UC surgery has two types that I am aware of. One is the complete removal of the large intestine and colon which results in a cholostomy bag for the rest of your life. The second is a shortening of the large intestine but it remains connected to your colon. Which results in frequent bowel movements due to the shortened intestine.

Both, I believe, are curative, have a high success rate and result in a completely acceptible standard of living afterwards. Good luck to your sister.

Q: Can you get ulcerative colitis after having colostomy reversal surgery?
I had my surgery about two months ago now, i keep having periods of time with blood in stool and all of the other symptoms for ulcerative colitis but sometimes it will just go away for like a week or few days and then come back again.

A: NO.

My answer assumes that your real question is “can colostomy reversal CAUSE ulcerative colitis?” – the answer is no.

But findin blood in the stool is always serious — you probably do not have ulcerative colitis unless you were previously diagnosed with this condition – it would not suddenly start after surgery. Do not make your own diagnosis like this — this is dangerous, and you may be missing something serious or deadly.

See your doctor right away!

Q: I have ulcerative colitis, and want to join the army after major surgery to get rid of it, could i?
The surgery would be completely removing my colon but then make another out of my small intestine. (I think) But it would completely rid me of ulcerative colitis and I’ll be able to live a regular life once I’ve made it through recovery.

A: Unless it severely hinders your ability to enjoy life, I wouldn’t recommend surgery. If it’s keeping you out of the military, and your doctor says it would best for you, then go ahead. But otherwise, reserve surgery as a last resort.

Q: people who had surgery for ulcerative colitis plz help …???
I have ulcerative colitis for about 5 years and i’m not doing fine right now .. but anyway … what i realy wanna know is how your lives changed after having surgery …and what are the risks of having sugery …. i went into alot of websites about sugery for UC and i can’t understand…!!! they sound like it’s something bad or that your gonna be suffering for the rest of your life of side affects … so i wanna know what is the good side of the surgery and the bad side of it …… ?

A: I have not had this surgery, but my girlfriend did. She was in her early twenties and they could not get her uc under control. She was fired from jobs because of the amount of time she spent in bathrooms basically she had lost control of her bowels.
The decision was made to have the surgery. She said it changed her life for the better and would not change a thing. She got married had children and has led a full and happy life. She has had very few side effects in the 15+ years she has had her J Pouch. Only recently she had to have her bowels re-connected due to an abscess that occurred. She said it was a minor thing, but then again she had always had a very good outlook on life.

I get the feeling from other sites I have read that the majority of people who have had their colons removed are very happy as they can stop being so effected by were and when they might have to use the bathroom.

Good luck to you. I hope you get better soon.

Q: When comparing Chron’s disease and ulcerative colitis, which of the following is true?
1.The cause of Chron’s disease is known, whereas the cause of ulcerative colitis isn’t known.
2. Chron’s disease can be found anywhere in the digestive tract, whereas ulcerative colitis is generally found in the colon and rectum.
3. Patients with both conditions benefit equally well from surgery.
4. Ulcerative colitis is remitting, whereas Chron’s disease is constant.

A: I have Crohn’s Disease so I’m going on what I have read about them both;

1. False. It’s not known what kicks off Crohn’s.
2. True. I have Crohn’s in both intestine (large & Small) and in my esophagus.
3. Surgery for both can give you years symptom free but can keep coming back, it is not a cure. Trouble is you can run out of intestine to remove after so long.
4. Crohn’s Disease can go into remission if treated.

I hope this helps you!! :o )

Q: Is surgery a good option if i have ulcerative colitis?
my doctor wants me to get surgery to remove my colon but my parents do not want me to

A: Ulcerative colitis is a disease that affects many parts of the body outside the intestinal tract. In rare cases the extra-intestinal manifestations of the disease may require removal of the colon.
Surgery is also indicated for patients with severe colitis or toxic megacolon. Patients with symptoms that are disabling and do not respond to drugs may wish to consider whether surgery would improve the quality of life. So I think ur doctor must have a proper reason to his decision. better go on with that decision. And taking advice from a Specialist of that field would be a fine idea too.GOOD LUCK!!

Q: When comparing Crohn’s disease and ulcerative colitis, which of the following is TRUE?
A. the cause of Crohn’s disease is known, whereas the cause of ulcerative coitis isnt known.
B. Ulcreative colitis is remitting, whereas Crohns disease is constant.
C.Patints with both conditions benefit equally well from surgery.
D. Crohns disease can be found anywhere in the digestive tract whereas ulcraive colitis is generally found in the colon and rectum.

A: D.

Q: Ulcerative colitis?
Whoever has had an ileo anal resection, i just recently had the first part of the surgery, (my surgeon does it in three parts) and i was wondering what exactly the second part is supposed to do, i just no i will get an ileostomy on the other side of my stomach.

A: resection of involved segment of the gut with an ileostomy is the aim and your surgeon has planned only he can enlighten you.

Q: did anyone have this surgery Ileoanal or ileorectal anastomosis for ulcerative colitis???
i’m going to have this surgery and i want to know how the surgery went and how recovery was after

A: Ileorectal anastomoses are commonly done in total colectomies for UC. Ileoanals are alot tougher to do and there’s always fecal incontinence to worry about as side effect.

Q: I am suffering from Ulcerative Colitis. What kind of Diet should I go on to alleviate my symptoms?
I have gone to many doctors, and the best solutions they offered were surgery and taking a bunch of pills and suppositories that don’t really work. I don’t know what to do and the symptoms havent gotten better after a month. What should I do?

A: The most important thing to do is to reduce the incidence of diarrhea and blood. Probiotics, especially the sacchromyces boulardii yeast are known to reduce and even eliminate the diarrhea. Research has shown that boulardii up to 6 times a day is important for UC patients. Below are a list of not too many bacteria that are readily available on various websites or a place like Whole Foods.

As far as diet goes you want to minimize the ingestion of sulfur containing foods, especially if you are experiencing rotten egg smelling farts as those kind of farts are indicating that you have a high concentration of hydrogen sulfide (H2S) which is a toxic byproduct of protein digestion. Those stinky farts also mean that your body is not properly detoxifying the H2S and will weaken the colon cells. Less meat, less onions and garlic, are important ways of reducing the sulfide precursors.

As far as things to add, make sure that you are ingesting the bifidobacteria listed below and get some Metamucil, which is essentially repackaged Psyllium husks, or Plantago Ovata fiber. The combination of Psyllium and bifidobacteria has been shown to be as effective as the standard pharmaceutical 5-ASA type drugs such as Pentasa or Mensalamine in clinical testing. Go figure $500/month vs. less than $60/month. The combination of 5-ASA, psyllium husk, and bifidobacteria is also beneficial.

As long as you are getting the bifidobacteria, try some oat bran, wheat bran, or brown rice. In in many patients the bran products help reduce inflammation.

There are many things you can to to ease colitis. Review the following list of KEYWORDs and go to http://www.pubmed.gov and type in: “ulcerative colitis” KEYWORD
to see the results of the peer reviewed journals. Here is the list…

lactobacillus and bifidobacteria: Kyodophilus by Wakanuga
lactoabacillus GG: Lactobacillus GG by Culturelle
sacchromyces boulardii: a gut friendly yeast by Jarrow
Pepto Bismol
Fish oil
bromelain
papain
quercetin
boswellia
vitamin C
vitamin E
magnesium in citrate or ionic form: traceminerals.com

The best but unpleasant treatment is a human fecal transplant. In pubmed type in: fecal Borody TJ
and you will see the articles. Download and review and you will learn that some people can be cured of ulcerative colitis. According to Borody, about 1/6 colitis patients get cured. You could be one of the lucky ones. I know folks who are doing well with this treatment.

Secondary possibilities
capric acid (not much research here but shown to be good against a Candida infection)
caprylic acid (not much research here but shown to be good against a Candida infection)

Q: What is the death rate for colostomy surgery?
I have ulcerative colitis and have been told that surgery is the only way to rid myself of the disease. The downside is that I will have to live with a colostomy bag. My real fear is not so much having a colostomy, but that I may die from the procedure. I am 29 years old and in reasonably good health aside from my condition.

A: With UC, you’ll have an ileostomy rather than a colostomy (ie all of your large intestine removed rather than just part of it) and believe me, what you’re imagining is far far worse than the reality of living with one actually is :) There is nothing I can’t do because of my ileostomy (except wear a bikini, but I do go swimming regularly during summer).

As for dieing during the surgery, I’ve been on the net for 10+ years supporting ostomates and never have I heard of anyone dieing during the procedure (and believe me, if anyone had, it would be all over the ostomy internet world – something like that would be big news) so that should tell you something about how rare it is.

Good luck.

Q: Help with Ulcerative Colitis?
My sister has had Ulcerative Colitis for about 10 years now. It is causing her a great deal of pain and distress at the moment. The doctor is now recommending surgery to remove part of her bowel. Obviously she is feeling very low, lacking energy (low iron) and generally awful. I feel completely useless and would like to help. She has two very active children which make life hectic too.

Any recommendations re diet, medication, alternative medicine, relaxation, help with sex – all appreciated.

A: I have worked in the Operating Room with UC patients. Our GI department head is a world reknown UC and Crohn’s surgeon. He gave us a presentation of the miseries of UC. My advice to her is to have the surgery. Our doc tells us that even when his patients end up with temporary colostomies(they come back and get it reversed most of the time), they are much happier than before the surgery. He’s said that a few of them are so happy that they didn’t even bother to get their ostomies reversed.
Once the bad tissue is removed, it takes about a year to feel completely healed. I have had a colectomy for other reasons, and I can tell you that the day my colon was removed was the best day of my life. It had literally been poisoning me for I don’t know how long.
The biggest challenge at first, is finding out what you can or cannot eat. Food will pass through your small bowel pretty fast, so it takes time to figure that out. However, you start getting better all over very quickly. It amazed me, once most of the immediate recovery from surgery was over- I felt better.
The surgeon she should see is Mark Koruda, at University of North Carolina Chapel Hill, NC. He’s an amazing surgeon who takes great care of his patients. People come from all over the place to have him do their surgeries. If your sister can’t leave the area, then contacting Dr Koruda may help her find the best local doctor for her. He knows alot of people and has trained a lot of great GI surgeons.

Q: My 22 year old husband has Ulcerative Colitis….?
Ulcerative colitis is a disease that causes inflammation and sores, called ulcers, in the top layers of the lining of the large intestine.

He found this out at the ER. The ER Doc referred him to a DR> which can’t get him in until the end of next month…and it will cost $245 just for the visit….we have no health insurance and CAN’T afford it…. he will most likely have to have surgery…What can we do to get him help…

We live in North Central, Arkansas…

Any info will be helpful

A: If he was an illegal alien, he could get free health care here in Dallas.

Q: I have Ulcerative Colitis. Does this mean that I will get Colon Cancer?
Hello. I was diagnosed with mild-moderate Ulcerative Colitis just two days ago. Being diagnosed and told that there is no cure (except maybe with surgery) really bummed me out. But as I read on about Ulcerative Colitis, I see that I am at higher risk of getting Colorectal Cancer.
To my knowledge, there is no family history of Colon Cancer but I’m sure that that makes little to no difference.
So is it likely that I will get colorectal cancer? And what can I do to prevent this?

Thanks in advance.~

;-)

A: Hi there – I have UC and I’m not sure what the%’s are of increase but there is an increased risk. From what I remember it is not a dramatic increase unless of course you leave your UC untreated. The best thing you can do is to check out Elaine Gottschall’s book Breaking the Vicious Cycle and also look up the Specific Carbohydrate Diet on the internet. The diet while pretty restrictive, has healed me once. I strayed away from it though when I became symptom free and it has now returned. I am going back on the diet immediately. Please consider how important diet is to your condition. Not very many gastros want to talk about this for some reason, they just start prescribing medicine. Please please check out this diet. It is hard – I’m not going to lie to you, but it did fix things for me. I just didn’t stick with it. Good luck and feel free to email me if you want any further information!

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