ulcerative colitis
Colitis FAQ » ulcerative colitis » ulcerative colitis pain

ulcerative colitis pain

Read and learn more about ulcerative colitis pain. For more, visit the Colitis website Colitis.PopularThinking.com

Q: What do you do about the joint pain associated with ulcerative colitis?

A: I have Ulcerative Colitis, and i bought one of those “Tens” machine,which give out tiny electrical discharges,their really good for joint pain, a little expensive, but what the heck, but they really work without taking any tablets.then no side effects from medication. go get one, there worth every penny.

Q: Around once a year I get extreme pain in my abdominal area, followed by a stool. Ulcerative colitis?
It feels like something is jammed in my intestine, and is extremely painful. The pain episode lasts around 3-5 minutes total, and is completely gone after the passing of a stool. Again this only happens around once a year and I’m trying to figure out what it could be. This happens with any food, typically with bbq, but doesn’t occur with every bbq. Any suggestions?
The stool is loose, and does not contain blood.

A: No not ulcerative colitis or it would bother you more than once a year. I know a guy who has it and he has to watch his diet very carefully or he’s in pain. I suggest you see a Gastrointerologist who specializes in this area.

Q: Do you have ulcerative colitis and joint pain?
I have done a lot of research and find that there is just too much to read. I would just like to hear from a few people with the disease…

I HAVE A FEW QUESTIONS:

1) Do you suffer from joint pain in conjunction with ulcerative colitis? IF SO, HOW DO YOU HANDLE IT?

2) WHAT TIME OF DAY IS IT THE WORST? (For me, it seems to be at night.)

3) DOES ANYONE TAKE ASACOL AND/OR 6MP (aka Mercaptapurine or Purinethol) FOR MAINTAINANCE? These are the drugs I take. I was under the impression that these drugs help to keep my intestines “calm”. Is it possible that they also help keep my joint pain down too? Admittedly, I’ve been lax in taking my meds lately and have noticed joint pain. Is it possible that my meds were alleviating the joint pain and I didn’t notice it until I got lax in taking them?

Thank you for your time answering this : )

PS I see a doctor regularly. I will be seeing him in a few months. I just wanted to hear from people in similar circumstances.

A: In 1980 I attended an engagement party in a local pub and they hasd a buffet, usual things, pies sausages on sticks, that sort of thing. I ate a chicken leg and when I got to the middle it was still frozen. I spat it out and complained. Next night I got the most awful pains and had to keep visiting the toilet, up to 20 (yes twenty) times during the night. Eventually I went to the doctor who sent me to hospital. I had contracted Salmonella and Campylobacter poisoning from the chicken. I was in hospital for a month and off work for 6 months. I lost 3 stones in weight and felt awful. I was on 16 different tablets a day including prednisolone and steroids. This left my intestines in a mess and I developed ulcerative colitis. Since then I have to take 6 Asacol tablets a day for life and have regular colonoscopys. The tablets are to stop inflamation of the colon and thus prevent cancer developing. I’m fine now but still take the tablets. My elbow joints ache but I put that down to tennis elbow that I contracted years ago. Asacol is not meant to keep your intestines ‘calm’ but stop inflamation. As far as the pain is concerned I have learned to live with it but if it gets too bad just take a couple of paracetamols. Don’t stop taking the Asacol no matter how well you feel and best wishes for the future. If you live in England you can join NACC (National Association for Colitis and Crohn’s Disease) who give you lots of information and support. Look it up on the web.

By the way it was three years before I ate any chicken again.

Q: Does anyone have ulcerative colitis and joint pain, if so, what treatments help the joint pain?
i have had ulcerative colitis for aver 3 yrs now. I am 20 years old and relatively healthy and not overweight. i find it ridiculous that at 20 sometimes it literally pains me to comb my hair or go downstairs. i have been suffering with this pain for the last 6 months or so, is this most likely related to my u.c. and has anyone ever tried having their joints injected with steroids? my uncle used to be a doctor n suggested that doing that on a regular basis may be the only way to truly find relief.
PLEASE HELP!

A: i have ulcerative colitis too. my main problem is the joint pain.

it is so horrible it can not move at all.

i can understand what you go through. my medications that is used to treat UC helps with the pain as well. Basically when i am in remission my pain goes away. when the disease flares up, the joint pain comes back. i have to take painkillers for that.

Talk to your doctor about this. he/she might prescribe painkillers. steroids are not the best thing. i would say avoid that.

Q: My sister has ulcerative colitis and cannot afford medication, now she is in extreme pain?
does anyone knows about cheap medication use to treat ulcerative colitis, she is only 19 years old, iulcerative colitis medication I’m so worried about her and she doesn’t do anything to help herself.

A: Nowadays, most pharmaceutical companies offer help to people who can’t afford their medications. Your sister will need her doctor’s help to set this up, however, because the doctor will need to fax copies of the prescription and such to whoever gives the assistance. Call her doctor and talk to the nurse about prescription assistance. You’ll need proof of income for your sister, and since she is over 18, she’ll have to be willing to do this or there’s really nothing you can do. Maybe if you made some calls for her and got some information, she’d be more willing to jump in and help herself. Hope I was able to help – good luck to you both.

P.S. – You’re a good sister to worry about her – she’s lucky to have you! :)

Q: Is there anything that I can do to releive cramping pain from Crohn’s & Ulcerative Colitis?
I am 8 weeks pregnant and am taking Pentasa for my diseases. Please help, the pain is so bad that I have to be off work for the next two weeks on bed rest.

A: Try Himalayan Goji Juice. I have a friend in his 60’s that has had Chron’s for years, plus he also has leukemia .
He has tried everything.
He was overdosing on his pain meds and was considering suicide due to the pain. His brother worked with a guy that was a distributor of Himalayan Goji Juice and bought a bottle for him. Immediatley he noticed his pain went away. He has been taking this juice for 4 months now and has reduced his meds to half of what was actually prescribed. He is gaining weight for the first time in years. And he actually goes out now. (Before he was so miserable that he hated to leave his house). He was still taking his meds to control his diarrhea with the Goji and he actually ended up so constipated that he had to go to the hospital to get flushed out. So his doctor was able to pull him off his diarrhea meds for the first time since he was diagnosed. Also, he recently had his blood work done, and the doctor said that he has never seen my friends blood look so good.
Himalayan Goji juice is perfectly safe for pregnant women. In fact, it helps relieve a lot of pregnancy discomforts (i.e. morning sickness).
Here are some links to find out more about Himalayan Goji Juice: www.natureshealthsecret.freelife.com
www.gojihealthstories.com (to read more peoples stories on Chron’s disease)
www.learnaboutwellness.com (to see a video study done by a Johns Hopkins doctor on how goji repairs your blood)
www.pubmed.com (type in Goji’s latin name “lycium barbarum” to see 75 scientific studies proving Goji works)

Q: i have severe pain due to pancreatitis and ulcerative colitis. Does anyone suffer from this? I am filing for ?
disability because I cannot work. Any suggestions regarding these conditions?

A: I have had pancreatitis and now I have crohns, god do I fight every day of my life, like today I’ve been sick all day, but you know since I got remicade I have been sick, if you like, you can email me at m.alvarado0862@yahoo.com, I know how you feel, or you on disability? please write, if I don’t answer tonight I will write you tomorrow,or try to join our group for info…crohns-owner@yahoogroups.com my name is melissa

Q: Ulcerative Colitis?
I was just recently diagnosed with Ulcerative Colitis and was wondering if anyone on here has any tips for easing the pains and cramping? I’m out of the pain pills the Dr. gave me and it hurts really badly. I’m still on all the other meds but they don’t seem to be helping.

A: I know too well about this. You could try Beano or Gas-X in the hopes that it will provide some control over gas, which is quite painful by itself. Yeah, I Know it’s like putting a band-aid on a severed limb, but anything that helps a little. Don’t know what meds you got, but the enema type seems to work the quickest-you’ll just have to bite the bullet -its better than feeling like you do now.
By the way, don’t take NSAIDs-not good for people with UC. We have immune system issues, and you don’t want to take a salicylate type med with your meds. Plus, they thin your blood, and don’t want to do that if you are bleeding.
Don;t know if you are doing this yet, but try a food journal for awhile to see if some things bother you more than most. And try stress relief activies-whatever works for you. I Know this sounds stupid, and it isn’t the root cause of the disease–but believe you me, the wrong couple of foods, and stress can really cause a flare-up, and you want to get to a remission-that’s when relief will come. For me, I can’t eat much citrus fruit, spicy food, and when I am symptomatic stuff like salad kills me too.

Q: Do you or someone you know struggle with the pain of Crohn’s Disease or Ulcerative Colitis?
I was diagnosed 15 years ago, and this year I’m fighting back by riding my bicylce 210 miles in 3 days. To find out more, or to support me on this journey please visit www.ibdride.org/arwyatt

A: hi doc, i am a female crohn’s survivor dxed at the age of 12. Currently going in for outpt. surgery to have a fistula closed with surgical glue and stitches.

I hate this illness and wouldn’t wish it upon anyone. I am a local CCFA volunteer for our chapter but I had a stroke 3 yrs. ago so I can’t do much now.

Anyway, thank you for doing your part to bring attention to this disease. I hope to see a cure before too long.

God Bless You and may you have a successful ride and a long remission!!! :)

Q: Is it normal for Ulcerative Colitis drugs to cause pain?
I’ve taken Asacol, Dipentum, Lialda and Colazal and all these drugs make me have bad stomach cramps, really bad smelling gas, and an urgency to run to the bathroom every few hours. When I am taken off these drugs, I feel fine. However, my doctor says that I need to stay on them. Are these drug interactions normal?
I have Ulcerative Colitis.
Oh yeah, and I am only taken these drugs in very small doses.
To answer the first question below, yes, we are pretty sure it’s Ulcerative Colitis. I had two different doctors give me two colonoscopies five years apart from each other and they both said it looks like UC.
Plus, I once also took Remicade (which is used to treat Crohn’s) and that didn’t work for me either.

A: Is the diagnosis of Ulcerative Colitis definite? My Dr originally thought I had Ulcerative Colitis, but it turned out to be Crohn’s Disease, and when I was on the drugs for Ulcerative Colitis, I had those same symptoms. (turns out alot of people with CD have awful smelling gas as a result of the disease). It is sometimes difficult for the diagnosis, because CD and UC are so similar. Just some food for thought…

Q: I have Ulcerative Colitis taking asacol 4mths.Just quit a week ago and have bad tum pain.is this the asacol ?
Have been in flareup for months so Dr and I thought maybe asacol was not helping but perhaps even making it worse .Brother has crohns.

A: I have no information regarding asacol. But wanted to provide you with another option for treatment in case you had not heard of it. It is the Specific Carbohydrate Diet or SCD. There is a book called Breaking The Vicious Cycle by Elaine Gotschall. Please consider this diet, do internet searches -there are support groups and message boards out there. It has been a livesaver for me (and many others) as I have Ulcerative Colitis. Best of luck to you!

Q: What are the options for someone with ulcerative colitis?
My ex boyfriend has ulcerative colitis and is in the hospital. He has severe bleeding and is in lots of pain. I am wondering what his options are and if they will remove his colon, and if so will he need a bag or is there something else they can do. He has had it for 4 years now, but hes bleeding has progressed so bad and they said his entire large intestine is damaged. Has anyone else suffered with this and what did you have done and what was your experience?

A: My boyfriend has this disease and has had it for a few years as well. He currently takes a lot of medicine everyday and for the most part it has done the job. Lately though, it has gotten really irritated and the doctor once told him that if it gets bad enough that they would have to remove the part of colon that is infected. Now, weather or not a bag is needed greatly depends on where the ulcerative colitis is at in the colon. Unluckily for my boyfriend, his is in a part where he would need a bag if it got to be that bad. My boyfriend seems to think his get irritated and worse during the winter months, but who knows. I wish you guys all the best of luck, and I hope everything goes ok. But, just remember, you’re not alone.

Q: I have had lower left sided abdominal pain they told me it could be ulcerative colitis could it be?

A: You are pregnant.

Q: Is There Any Way to Safely Consume Alcohol with Ulcerative Colitis?
I’m a 20 year old male with ulcerative colitis. Being my age, all my friends go to parties and have a good time drinking while I’m stuck being the designated driver all the time. Is there any safe way to drink with my friends without regretting it in the morning with horrible pain? Any help would be greatly appreciated!

A: Yes…. put a gun to your head first…… why would you want to drink that rot-gut just to be accepted….

Be your own person…. First…. and that means doing what is best for you.

Q: would these symptoms be ulcerative colitis ?
16 years old male.
blood in stool here and there. bright red or maroon sometimes.
fatigue, yawning a lot.
harder to get up due to lack of energy and back pain.
no diarrhea, no abdominal pain, no weight loss.
would it be ulcerative colitis ?

A: Everyone is different but these do not sound like typical symptoms. That said, plenty of people present with very atypical symptoms and, rarely, non at all. If your fatigue is due to vitamin deficiencies there’s a chance. Bright red blood means it was pretty low in your GI tract, so it may just be a hemorrhoid. Either way, bleeding like this is certainly abnormal and should be discussed with a medical professional. If some more conventional solutions do not solve your problem you may need a colonoscopy to rule out more serious diseases like ulcerative colitis.

Related Posts

Write a comment